You heard it right. My 11 year old has to have his esophagus widened and they are going to use Botox injections to try and keep it open. After two years on an experimental medication, Zachary's last endoscopy indicated that he was only being partially treated for Eosinophilic Esophagitis. He had to discontinue the study medicine and go back on Flovent. The furrows on his esophagus had lengthened and this was causing Zachary to have difficulty swallowing. Although we are seeing an allergist and have tried an elimination diet and high doses of Singulair, his symptoms remain unchanged
At 69 pounds, we have to find a way to get nutrition into my little guy. This is the last step before a feeding tube has to be inserted. The sad situation is that Zachary is so tired of the pain of eating, he wants a feeding tube. The Botox surgery is Friday morning at St. Luke's Presbyterian Hospital for Children in Denver, Colorado.
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