It has been a rough couple of days. It seems like when Joshua is doing well, then Zachary has difficulty. Since Zachary had his upper endoscopy with a biopsy on Friday, he has been feeling worse every day. It hurts his chest to get up and move around and he has difficulty eating. I finally went to the doctor today to make sure he was okay. It turns out that since he already had esophagitis when he had his biopsy, the site became more irritated. We are now watching for bloody stools and today we begin Sucralfate to coat his digestive system. Hopefully this will help him. He is has tried several times to go outside and play, but ends up coming inside shortly after, due to pain.
When things are tough around here, I always try to find ways to escape without leaving home. This video on YouTube just filled the bill... Hope you enjoy!
To live!
Michelle summer 2009
Wednesday, May 13, 2009
Friday, May 8, 2009
Zachary's Latest Endoscopy and Biopsy
Zachary had his fourth endoscopy and biopsy today for the medication study he is participating in for Eosinophilic Esophagitis. Although the biopsy information will all go to 1st Allergy, Dr. Rosensweig, our pediatric GI specialist was able to send us home with a picture of Zachary's esophagus. I was not surprised by the fact that Zachary's esophagus was moderately to severely furrowed with esophagitis present, as he has had quite a bit of discomfort this month. However, I am worried. We can go up one more level on his experimental medication, but then we may have to begin an elimination diet. As it is, he is going off of Prilosec and beginning a new medication to coat his esophagus before he eats. I hope this helps him.
I found a really interesting article on EE while trying to figure out exactly what "furrows" do to your esophagus, Although the article did not answer that particular question, it had very helpful information on the differences between GERD and EE in children. Here is the link: http://www.childrensmemorial.org/cme/online/article.asp?articleID=125
Now that there is a very realistic chance that Zachary will have to alter his diet, I will pay particularly close attention to the blog Funky Food...Feeding Kids Allergic To Food. You can find this blog at http://funkyfoodallergies.blogspot.com. You can also find Trisha on tTownmoms.com.
I found a really interesting article on EE while trying to figure out exactly what "furrows" do to your esophagus, Although the article did not answer that particular question, it had very helpful information on the differences between GERD and EE in children. Here is the link: http://www.childrensmemorial.org/cme/online/article.asp?articleID=125
Now that there is a very realistic chance that Zachary will have to alter his diet, I will pay particularly close attention to the blog Funky Food...Feeding Kids Allergic To Food. You can find this blog at http://funkyfoodallergies.blogspot.com. You can also find Trisha on tTownmoms.com.
Friday, May 1, 2009
Subscribe to:
Posts (Atom)